We got very disturbing news today.
Rachel, a woman in Tiffany's Myotonic Dystrophy support group, died suddenly this week from complications relating to her Myotonic Dystrophy. Over the weekend she began getting weak from lack of Oxygen in her blood until Tuesday she finally went to the hospital, where she died Tuesday evening. Lack of Oxygen in the blood is a complication of Myotonic Dystrophy.
Tiffany does have low Oxygen in her blood – she sighs a lot, as if to catch her breath, and has sleep apnea, which is related. However, it sounds like Rachel's low Oxygen was worse than Tiffany's.
This has come to a shock to us because Myotonic Dystrophy is supposed to be a very slowly progressing condition which does not generally cause life-threatening issues until old age, and even then the issues are generally manageable. (A pacemaker may be required at some point, for instance)
Rachel is the first person we have know to die of complications from Myotonic Dystrophy.
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